IndiaPosted at: Nov 5 2025 1:40AM


Khandelwal urges PM Modi for special policy support for children afflicted with rare genetic disorder

New Delhi, Nov 4 (UNI) In a bid to help children suffering from a rare and life-threatening genetic disorder, Member of Parliament from Delhi’s Chandni Chowk, Praveen Khandelwal, has written to Prime Minister Narendra Modi, seeking special policy intervention and fast-tracked approval for the treatment of LAMA2-related congenital muscular dystrophy (LAMA2-CMD).
LAMA2-CMD is one of the world’s rarest and most devastating genetic disorders, affecting infants and young children, often robbing them of the ability to walk, move, or even breathe independently. Khandelwal’s appeal comes from a profoundly personal experience, a 20-month-old girl from his constituency, who is currently battling this cruel disorder.
According to the MP, her story is not isolated, the family has so far identified around 60 children across India suffering from the same condition, who await a ray of hope.
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